Slow and Steady

So overall the last 4 days have been rather uneventful in Colton's world. That's a good thing.

Thursday Colton was put back on the NAVA and he has been tolerating it very well. They have decided to wean the NAVA very slowly, only changing one thing at a time. The goal is to wean him to a level that he can tolerate being off the breathing tube. Saturday night the breathing tube came out when they were trying to move Colton to a new position. He seemed to tolerate it well, but the tube was put back in. When the tube came out some of the settings on the ventilator were changed inadvertently and Colton tolerated those as well. When the error was discovered, the settings were changed back to the ones he should have been on and he tolerated those as well. His chest xray last night looked the best it's ever looked. I would venture to say that sometime this week we'll try him of the ventilator again.

Feedings are going much better. Colton started getting suppositories every 12 hours to make him stool to see if we could get things moving through. Well it has worked. His feedings were increased to 25 ml every 3 hours today. Right now hes getting breast milk, but I'm having a hard time keeping up with him. Pumping sucks, literally. I've been pumping every 3 hours including at night. It's been hard to keep up with sleep as well. It's one of the only things that I can do for Colton right now, so I'll suffer with no sleep for now.

We also got another test result back. The Smith-Lemli-Opitz came back negative. Yeah!! Another thing to check off the list.

We have been spending nights at home since last Tuesday. It's been a good thing to be at home and spend the days at the hospital with Colton. We have even spent time with Marley. He's such a good doggie.

We want to thank everyone who has thought about us and Colton over the past few weeks. We are very grateful for everything everyone has done for us.